Last Friday night I had the opportunity to have some of my dearest friends over to discuss some fundraising ideas. John and Cindi came from Grayson GA, Kerrin and Beth came from Roswell, and my bestest girls from my neighborhood, Amy and Lisa walked over. We were honored to have Pamela Locke here to give us some information on NFT (National Foundation for Transplants). Pamela has had 2 kidney transplants and is such an inspiration and a miracle. We are hopefully going to do a fundraiser the end of September, we just have to nail down a place and the exact date.
I talked to NFT today and they are sending me some paper work to fill out, and I will have the great pleasure to become a patient with them. I have contacted a financial coordinator from Emory and I'm waiting to hear back from someone. I'm looking forward to getting together with everyone again to go over everything we are supposed to do.
Will keep you posted on a date and location!!
Monday, July 18, 2011
Saturday, July 9, 2011
Some Good News
Well finally I've received some good news. I got a phone call 2 weeks ago from Ann with the LVAD team with results from the x-ray. Dr. Vega doesn't think we need to drain the left lung, and I will not see him again until July 25!! I'm only going to the coumadin clinic once a week now, so hopefully that will get all worked out for once a month visits. So far, the last two times, I've been within my range which have been 2.0 and 1.8. YAY!!
Last week was a really good week for me. It was my 8th week, and I started feeling like my old self again. I was sure I was going to feel better by week 5, because some of the other LVAD recipients talked about how great they felt around week 5. I was really starting to get frustrated, and when that happens, I go to the "feel sorry for me" place. I luckily didn't stay in that place long, and started to feel better by week 7. Now I feel amazing and feel like my old self again.
Thanks for all your thoughts and prayers!! I will try to update this more often, so thanks for all your patients!! I hope everyone had a wonderful 4th.
Last week was a really good week for me. It was my 8th week, and I started feeling like my old self again. I was sure I was going to feel better by week 5, because some of the other LVAD recipients talked about how great they felt around week 5. I was really starting to get frustrated, and when that happens, I go to the "feel sorry for me" place. I luckily didn't stay in that place long, and started to feel better by week 7. Now I feel amazing and feel like my old self again.
Thanks for all your thoughts and prayers!! I will try to update this more often, so thanks for all your patients!! I hope everyone had a wonderful 4th.
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